Another day, another exhausting episode or two with only more to come. Today is the first day of summer. The first day that my daughter will be home all day, every day, with the exception of a couple of VBS programs, some math tutoring and a mini-vacation or two. And I look ahead to a very tiring time.
She has now been on something similar to Tegretol for three months. Initially, she had two fantastic days, and then back to the same old song and dance. Her psychiatrist increased the med from 100 mg twice a day to 300 mg twice a day. I would say that it is affecting her like water. Wait, water would probably be better in that it might slightly detox her. She is also on Abilify, which we have increased substantially. To the point that I really don't want to go any higher.
I look back over the past 18 months, and although we have had some times that have been a little more bearable, there really has been no good time. What's more, her maturity level has either decreased or she's just been passed up by other kids her age. And she now has these obsessions, which are relatively new. Not like you think of an autistic kid playing with toy car wheels, but obsessed over a sad story that she saw on the internet and trying to corner anyone she can to watch the rather lengthy video. Making posters about the baby boy in the video, etc., etc.
So, I'm not really feeling the medication groove right now. We're backing down off of Tegretol, increasing vit c, niacin and researching some more. Strengthening resolve with yeast detox. More water intake. Trying to boost her immune system, increase her detox, support her liver. She'll stay on a high dose of Abilify. At least for right now.
Our psychiatrist says he's going to have to do some more research. Always a banner day when your psychiatrist who has dealt with things like this for 30+years is stumped by your case.
So I am now reading Body Ecology by Donna Gates and What Works for Bipolar Kids by Pavuluri. I'l let you know what I find out....